Woah! Where Have I Been?

I honestly don’t know where I’ve been! My daughter was diagnosed with a rare and weird autoimmune disorder, I started a ridiculously difficult course (for work), and work itself has been INSANE, and that’s putting it mildly.  Image

Has seem to be the motto at work lately.

My hair is still not growing back, but the falling out has decreased. The side effects of the spiro are still lingering. I’m eating better and exercising but not as much as I’d like or should.

We have two new frogs.   Fudge                   tree frog     Spike

 

 

OK, I think we’re all caught up now.

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My 3 year old daughter repeatedly responds to my requests with, “OK, OK, hold on.”  It drives me batshit crazy.  In the morning while I’m doing my best to get two kids ready, trying to make myself look presentable as I can, and leave the house with everyone’s lunch, breakfast, schoolbags……”OK, hold on,” is the LAST thing I want to hear.  When I call her to come to the table for dinner, “OK, hold on.”  At night when I prompt her repeatedly to brush her teeth and pee, “OK, hold on.”  Today while I was desperately trying to get her to hurry her little bum up and walk a tad bit faster to get into the car, “OK, hold on, ” followed by, “Mom, why are we rushing anyway, we’re on vacation.” That question hit me like a ton of bricks! Why was I rushing? What was so important? I have been watching my little girl lately and she’s so sure of herself (most of the time.) She does things her way and at her own pace.  I don’t want to ruin that with my own neurosis. ( I think I may have passed some on to my son already.)

In an attempt to save my children from the screaching banshee I turn into in the mornings, I am going to get up earlier.

Image(This is the much skinnier, with way bigger boobs version of  banshee Colleen.)

Will we still be rushed in the morning? Of course.  That’s life, but maybe I can make it a little easier.

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Balance Quest

It’s almost Christmas, and I have not bought a single present for anyone other than my children.  This is not really like me.

I’m tired.  The spironolactone I started taking for my hair loss is kicking my ass.  I am one of those people that look at the list of possible side effects and immediately start planning on how to deal with them…cuz I’m getting them…ALL of them!

I’m fatigued, I have sporadic nausea, I’m dizzy,  my migraines have increased, and my period is now gracing me with its appearance every other week.  I’m not sure if the sprio and rogaine are helping my hair grow back yet, but I’m pretty sure the falling out has decreased!!  Focusing on my hair and Christmas and the kids, has distracted me from focusing on my husband and the rest of me.  My weight loss has stalled.  I know it’s my fault, I’m struggling with balancing everything.

Finding and maintaining balance in your life is hard.

Something always seems to give.  How do other women do this? Take a good look at this woman ^ this is not possible…not all of the time.  I want my kids to be happy and know that they’re loved, I want my husband and I to be how we were 10 years ago (less stressed, happier…), I want my house to be somewhat clean and my bills to be paid on time, I want to be a compassionate teacher and reliable worker, I want to be healthy, I want to lose weight, I want to find the energy to exercise every day, I want to be a supportive daughter, sister, aunt, friend, I want to have fun again, and worry less.

PCOS SUCKS

I have always been open and honest on this blog, in attempts to raise awareness, and hold myself accountable.  My weight has always been something I’d rather not talk about, but I have, and I’m OK with talking about it now.

This blog may be the most difficult one to write.

Last May I posted about losing my hair.  This Thursday, I finally met with the head of Women’s Dermatology/Hair Loss at a world renowned hospital, and………………………………………

she was nice.  I sat in traffic for over two hours.  I met a very friendly valet guy who, pointing to my extremely old foot tattoo, said. “oh, you a gangstaaa, huh?” I took more than one free sample of the new Aveeno face moisturizer with sunscreen.  I was told that I have been doing an amazing job managing my PCOS, and keeping my hormones somewhat balanced.  I got my scalp examined, and my hair pulled.  I left with very few options.  I have started Rogaine for women, and have been agonizing over tons of data on Spironolactone and Propecia, (2 more drugs that I will have to take for the rest of my life, if I choose to go that route.)

I came home and threw myself a little pity party.  I cried.  I have always been known as the redhead. I love my hair.  While still whimpering, I came across a blog article posted by a family member of a 35 year old women, who had written the piece when she was 31 and first diagnosed with breast cancer. She lost her 4 year battle, and here I was crying about my hair. I felt guilty, but I still sat there and cried.  Yet another piece of me is being taken away by a disease that impacts 5-10% of women, yet not too many even know about it.

ROGAINE: I didn’t want to use this! If I ever stop, I will lose whatever hair grew back.  (that’s if it works-there is a 20% success rate.) I was thoroughly warned by the doc, the pamphlet in the box, and the millions of women using it, who also have access to a computer and are not afraid to use it.  There is a “DREAD SHED.” I don’t have enough hair up there to shed, let alone shed dreadfully!! This shedding is supposed to begin 2-4 weeks in and last a few weeks.  I’m 3 days in and it has begun.  I lost my shit today in the shower.  How can this be happening so soon?  My daughter stood in front of the bathroom mirror last night and pretended to massage her own scalp, while watching me apply the R word.  She turned to me and said, “Mama, our hair is so pretty, your’s is orange and mine is bwown (we’re having a little r pronunciation issue.) Then the sadness returned and I immediately began to worry that I passed this bag-full-of-suck disease to her.

PROPECIA: a drug usually never prescribed to  pre-menopausal women due to horrendous birth defects in male fetuses. (No, I am not planning on having any more children, but if anything ever happened, I don’t want to be faced with that decision. )

SPIRONOLACTONE:  many women with PCOS use this drug to treat excess body/facial hair, cystic acne, and hair loss, and I hear it’s effective. This drug (in extremely high doses) is known to grow tumors in rats.  I have made a conscious choice to not use birth control pills to help with my ridiculously painful and heavy periods because of the increased risk of breast cancer.  So, now I’m faced with this decision.   I have read more research articles, blogs, and discussion board posts than anyone ever should. I have cried, prayed, cried, and prayed some more…and I’m still undecided.

Please don’t read this and think that it’s all about vanity.  I’m not a vain person.  I am just trying to hold on to a piece of my femininity, a piece of myself.  I know that people are going to judge me and say, “Your appearance- weight, hair, skin… doesn’t define you.”  And all I can say to them is, ” Until you know my joy, know my pain and know my struggles-
Until you’ve walked these shoes, paid my dues and felt my troubles- Until you’ve shed my tears, known my fears in all my years -Only ’til then, you only know what you think you know.” (Until by The Love Experience)

I am also extremely aware of all of the magnificent blessings I have in my life, and I thank God and the universe every day for them.  This is a tiny hurdle in the greatness of my life, and I will eventually get over it.  Thanks for listening while I try.

Who Knew!

I like yoga!

All those years I shied away from it.  I thought, how can doing weird stretches help you lose weight?

I LOVE IT!!

OK, so now’s the point where I admit to something that is somewhat embarrassing.  I ordered and have been using an exercise routine from Beach Body known as, Yoga Booty Ballet.  It’s yoga and cardio and some free weights. Aside from Billy Blanks’ original Tae Bo, I have never completed an exercise routine and liked it.  (I miss you Billy)

I know that these DVD’s aren’t going to be the answer to all of my fitness prayers.  But, they’re a great start.  I have found something that makes me move, and sweat, and makes me really focus on my body and mind. The instructors are beyond corny, there is some Rajesh Koothrappali look-alike  playing the bongos in the background, 

and there is a crew of overly happy women with wide toothy grins, following each instruction perfectly.  But I don’t care, it makes me move. Yesterday after completing a DVD  with two overly needy children and a very attentive dog (I heard at least 100 “Mom can you ____________?’s”, had more than enough assistance during raised knee crunches from my 3-year-old daughter, received 4 slobbery kisses from a bulldog while in downward facing dog, and had to take one emergency jog to the bathroom to wipe a poopy butt!) I realized that I too was smiling like a fool.

So my journey continues.  I’m eating better, I’m finally moving, and I’m starting to like myself a little bit more each day.  (Check out the newest smoothie recipe in the recipe section, it’s amaze balls!)

And if you hear someone yelling “I love yoga booty ballet!!) It’s just me…. I don’t care, I love it!

WARNING-GRAPHIC!!!!

Yup, this about sums up my morning!

A few months ago, my period decided to take a little hiatus, extending my cycle by about a week.  Normally I wouldn’t care, however, we have a little vacation planned.  Now let me set the scene here for all of you non-parents.  A vacation with a 6 and 3-year-old is not a vacation.  It’s out of our element, away from our routine chaos! It is not fun to have your period (let alone my period) while walking around theme parks in 90 degree weather, or swimming in a river without a bathroom in sight for miles. I know this because it happened last summer.  I did my best to grin and bear it, always wondering if I was leaking, always scanning the horizon for restrooms, loading up on ibuprofen to slow my flow, and hopefully dull the pain of my exploding cyst. It sucked, but my kids had an awesome time.

So despite my horror movie of a morning, I am pleased that my body is broken. (at least for today)

Umm……Thanks PCOS?

Slow and Steady…you can say that again!

I am officially at the lowest weight I have been since starting this “overhaul.”  I cannot really see a difference, I doubt anyone else can either.  I should have lost a lot more chub by now.  I can list a variety of excuses…(a full-time job, 2 kids, increased cyst pain, focusing on losing my hair, laziness, life) however, the truth of the matter is, I just need to try harder.

My adoring husband’s attempt at not making me feel like a total slacker, went something like this, “Well at least you didn’t gain any weight.”  Umm, thanks hon!

But I guess he’s right.  I don’t consider myself successful, but I also don’t see the past year as a total failure.

OK, now that I have addressed the weight loss progress/lack of progress, I’d like to discuss something else.  I hate the summer.  I hate the sun.  I hate the heat. I hate the humidity.  I hate sweat.  I hate the much-needed sunblock. On the other hand, my kids love being outside, swimming in the pool, running around, being kids.

  I realized a few mornings ago that I have developed some type of anxiety about going outside.  This cannot be normal or healthy.  Is this the beginning of an agoraphobia diagnosis?  I don’t think so.  I just think that I am stuck in some type of messed up rut.  I can go outside without having a panic attack, but I certainly have to psyche myself up for it.  Ever since I was younger, the heat screwed with my internal systems…I’d get headaches, my tummy would toss and turn until I finally got sick, my skin turns apple red within seconds, and so on.  I think facing those lovely side effects with two kids is what’s causing my anxiety.  I am making myself deal with this new-found psychological dilemma, so my kids can have a normal childhood.  I may have given them life, but they are saving mine.

“You’re The Prettiest Girl Ever Made”

Tonight, as my 3-year-old daughter was doing the pee-pee dance, I rushed to help her onto the toilet. Smiling up at me, she said, “woo mom, that was a lot of work. Thanks, you’re the best mom, and you’re the prettiest girl ever made.” I cried a little. To her, I am the prettiest girl ever made. In my eyes…not so much!

I don’t think that I’m a hideous creature that should hide away in a dark, dank cave. But I would never consider myself pretty. And let’s not even mention my body image issues.

This little conversation with my darling daughter got me thinking. How does she define pretty? Does she factor in kind eyes, a friendly smile, a big heart? Whatever it is that makes up her definition of pretty, I hope it is never corrupted by her peers, the media, or worse….some boy. What will happen when she finally realizes that her views don’t exactly mesh with society’s? Will she be strong enough to hold tight to her convictions? Will she no longer see me as the prettiest girl ever made? I have all intentions of becoming healthier and more fit by then. Not to be “pretty,” but to be a positive influence in my children’s lives. So I can be around to watch them become the most amazing adults, adults who will change the world. So, my transformation is happening, slowly, but happening none the less. I have not been a very responsible eater the past few weeks, and I’m still struggling to get up an hour earlier to fit in a workout, but I know it will happen.

My heart aches when I think of my baby girl and my son having to grow up in a world so obsessed with looks. I worry daily that I passed along PCOS to my daughter, or I passed along some aspects of it to my son. Please don’t think that I don’t worry about the pressures my son will have to face, because I worry plenty. But, I have lived my life as a girl with PCOS and its appearance altering symptoms, and I know just how difficult it can be. I also know women who are considered beautiful by society’s standards and have suffered just as much as “plain” or even “ugly” women. Our culture is mean. If it were a character it would be this bitch! (Sara Michelle Gellar,Cruel Intentions)

I know that to be able to empower my daughter (and son) I need to empower myself. I am learning that my worth is not tied to my weight, or my hair! I’m learning to not hate my body so much. I’m learning how to transform it instead. I’m learning how to accept my diagnosis, learn as much as I can about it, and beat it. I’m learning to be strong for my daughter. As she grows, I will be teaching and living the following ideals, so that my daughter and my son will truly understand what makes a woman “pretty” AWESOME!

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“A Hair In The Head Is Worth Two In The Brush”

I’m losing my hair.  I’m really losing my hair.  Lots of women say they’re losing their hair when they see extra strands in the shower or on their pillow.  My endocrinologist confirmed it for me.  My hair is falling out. Fuck you PCOS!! First you convince my pancreas to make extra insulin that my body doesn’t need, blessing me with a weight problem, then you screw with my menstrual cycle, then you rob me of my fertility and make me feel broken inside, then you decide to present me with growing/rupturing cysts each month that leave me gasping at times, then you deliver excess testosterone, causing hair to sprout up where it’s not supposed to, and now the coup de gras….you’re taking my hair.

I love my hair.  It was the only thing that ever made me feel beautiful.  I used my hair to hide behind when my weight continued to rise.  People would ask me what color dye my hairdresser used, and would scoff in jealousy when I told them it was au naturale.

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Now it’s thinning and falling out.  My doc suggested Rogain for women.  After doing some research, I’m all set (for now, we’ll see how desperate I get.) I did find a lot of helpful sites written by women with PCOS.  I am currently using a scalp treatment consisting of pure aloe vera gel, rosemary oil, and lavender oil.  It makes my hair feel amazing, but I smell like a freaking garden. I’m also taking biotin, retress, and a hair/skin/nail supplement. I have seen less hair falling out.  I’m not sure if I’m seeing any regrowth,but I’m hopeful.  I refuse to give up on myself.  I am going to take my body and my health back.  I’m tired of PCOS running the show.

It wouldn’t be a blog of mine without a period from hell reference…..

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Am I right Ladies?

photo 2Mother Nature, you Bitch!

When The World Says ‘Give Up,’ Hope Whispers ‘Try One More Time.’

Hi, I once again have allowed fatigue and life to get in the way of my writing.  I didn’t write about the Boston Marathon Bombings.  There were plenty of news stories, blog posts, Facebook updates, tweets, and articles written.  Here’s what I have to say (the short and sweet version.)

I’m happy they caught the cowards.  I’m more than proud to be a Bostonian. I’m in awe of how the people from Boston and around the globe  validated that there are far more good people in the world than there are bad. I don’t care where the cowards came from, who their parents are, where they went to school, or how nice they were. I’d like to never hear their names again, or see their faces again.  I would like for all Bostonians to somehow always feel the sense of unity always display the courage, always offer the support, and always hold the pride that we have all experienced the last few weeks.

Boston Strong 1024x680 Boston Strong

“A heartbreak isn’t always as loud as a bomb exploding.  Sometimes it could be as quiet as a feather falling and the most painful thing is… nobody hears it except you.”

This past week was National Infertility Awareness Week.

Do you know the true facts about infertility? Chances are unless you’ve been affected by it yourself, you probably don’t. Even if you are affected, you may feel alone, depressed, or some how at fault for your condition when you are absolutely not to blame. Here are some basic data and statistics about infertility that you should be aware of (taken from Discovery Health and elsewhere):

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    In America alone, infertility affects over 6 million women and their partners – that’s about 10 percent of the reproductive age population. One in six couples will encounter difficulty getting pregnant and experienceinfertility to some extent.
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    Infertility is not always “the woman’s fault” – indeed, infertility affects male and female reproductive systems nearly equally. In approximately 30% of all infertility cases, there are both male and female factors causing difficulty in achieving successful pregnancy.
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    In approximately 30% of cases, the causes will remain “unexplained infertility” despite full medical work-ups and extensive diagnostic testing. This only points out the complicated nature and many causes of infertility, and how even today medical science cannot provide all of the answers.
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    There is no such thing as a “miracle cure for infertility”, despite thousands of websites and unscrupulous individuals promising such. The causes and reasons for infertility are far too numerous and different to all be “solved” by one single approach or drug product.
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    Infertility is a disease. Albeit it took until 2009 for the World Health Organization to officially define infertility as a disease. This was an important milestone in recognizing the serious medical nature of infertility and helping to bring it more recognition and hopefully governmental and scientific support.
  • 6
    Infertility is a disability. In 1998, the U.S. Supreme court held that infertility is a disability under the Americans with Disabilities Act (ADA). However, most insurers in the United States still provide no coverage – or only extremely limited coverage – for medical treatment related to infertility. Many of those affected with infertility have to struggle in the workplace not just to afford expensive IF treatments but to receive fair treatment and understanding if they must take time off for procedures, testing, or rest during a difficult pregnancy.

Chances are you know someone who has suffered with infertility. You do, if you know me personally. I am not going to sit here and write my own story again.  You can scroll through my archives and find it.  I will leave you with some very powerful and thought provoking quotes.

Infertility

For every woman unhappy with her postpartum marks, is another who wishes she had them.

this sums up fertility vs infertility perfectly!

Everyone’s Got To Face Down The Demons…Maybe Today, We Can Put The Past Away

I haven’t written in a looong time, and I’m not happy about it. Unfortunately, sometimes it’s difficult to find the time to sit down and think!

I have agonized over writing this post, as it may be considered hurtful or offensive.  However, my intention is not to offend.  I hope it causes pause, and possibly sparks a discussion.

“All men are tempted. There is no man that lives that can’t be broken down, provided it is the right temptation, put in the right spot.  ~ Henry Ward Beecher

People like to throw around words like addict and junkie.  What most people don’t know is the person behind those labels.  Every addict is someone’s mother, father, son, daughter, sister, brother, friend.  It’s easy to judge people, especially people who appear weak.  But what makes a person an addict?  How did their life take such a different turn?  Is it genetic-do the actions of family  influence one’s addictive behaviors? Is it due to a mental illness? Can it be chalked up to just” bad” choices or “bad” friends?  Is is a  reaction to some type of trauma? Addiction is so complex, too many factors come in to play

I know many people who are addicts.  They are some of the most loving, caring, “nice” people…with a problem.  But, this post isn’t really about the addict, it’s about the people who love them.  I had a conversation with my cousin the other night about how from addiction, an absolute, all-consuming selfishness grows.  It’s not an “I’m a spoiled brat selfishness,” or an “I’m entitled selfishness.” It’s a feeling or desire that no one or thing can come between the addict and getting their needs fulfilled.  It’s not done out of hate, anger, or malice.  It controls the addict and leaves everyone in it’s wake destroyed.  It clouds the addict’s ability to see themselves how others see them. It distorts reality and their feelings of love and anger and support.  It tricks them into thinking that they aren’t the one with the problem, and that anyone who thinks otherwise is betraying them.

So what is one to do when this overwhelming selfishness starts to break down families and relationships? When this isn’t happening to you, it’s easy to simply say, “just walk away.” But for those of us who have experienced the gut-wrenching pain, the pain that makes you want to throw up, cry, hit a wall, and hide all at the same time, you know it’s not that easy.  So, you have offered acceptance, forgiveness, support, and love, and still the addiction and the selfishness continues.  Is walking away an act of defeat or abandonment?

I wholeheartedly believe the answer to this is NO!  It’s an act of survival.  If people spend their entire life trying to convince an addict that they are in fact addicted and require help, what kind of life will they have had?  You don’t stop loving or supporting, but you have to start living and growing.  And to be able to do that type of “living,” without an intolerable amount of guilt, is nearly impossible, but it needs to be attempted.

Beautiful flower growing on crack in old asphalt pavement - stock photo

So, be supportive, be calm, set limits, and be loving, and be brave.

And live!